âDialogue with Emotionsâ through the Eyes of Patients with Epilepsy and Caregivers

Gabriela Salim Spagnol; JÃ©ssica Elias Vicentini; Isilda Sueli Andreolli Mira de AssumpÃ§Ã£o; Li Hui Ling; Li Li Min

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Chapter 4 âDialogue with Emotionsâ through the Eyes of Patients with Epilepsy and Caregivers

In: The Patient-Doctor Dynamics

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Gabriela Salim Spagnol

Gabriela Salim Spagnol
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JÃ©ssica Elias Vicentini

JÃ©ssica Elias Vicentini
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Isilda Sueli Andreolli Mira de AssumpÃ§Ã£o

Isilda Sueli Andreolli Mira de AssumpÃ§Ã£o
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Li Hui Ling

Li Hui Ling
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Li Li Min

Li Li Min
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Type:: Chapter

Pages:: 50â60

DOI:: https://doi.org/10.1163/9789004386563_006

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People with epilepsy often report being given insufficient information and support to manage their condition according to their wishes and needs. Our previous work based on the Demonstration Project on Epilepsy under auspices of who-ilae-ibe in Brazil has shown that psychosocial domains have been poorly addressed. In order to deal with these issues, we have developed a group dynamic approach at an Epilepsy Out-Patient Clinic called âDialogue with Emotions,â which contains elements involving physical, psychological and social domains all tied to emotions. The study was approved by the local Ethics Committee. The session occurred before medical consultation time, weekly over a period of one year. The group session lasted one hour, with approximately ten participants per session. For research purposes, reports were recorded and qualitatively analysed. With regard to results, specific themes stood out in the recordings, such as shame of being seen during a seizure, stigma and prejudice in interpersonal relationships, lack of knowledge about the etiology and pathophysiology, how to proceed in first aids, medication compliance, surgery, safety of activities, practices to decrease exposure to seizure triggers, difficulties to keep a job, and memory deficits, among others. Patients could exchange information and advice others to learn about epilepsy and its management, providing sympathetic understanding. Healthcare professionals demystified and clarified misconceptions. Close friends and family were also engaged in sharing their experiences, providing support to deal with issues related to epilepsy. As a concluding remark, âDialogue with Emotionsâ can be an alternate way for patients and families living with epilepsy to discuss and share their feelings. This is the first step in the process towards overcoming barriers and improving quality of life. In this setting, patients and caregivers are at same level as healthcare professionals, who empower and encourage patients to seek his/her own solution and understanding about epilepsy.

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The Patient-Doctor Dynamics

Examining Current Trends in the Global Healthcare Sector

Series:Â At the Interface / Probing the Boundaries, Volume: 114

E-Book ISBN:: 9789004386563

Publisher:: Brill

Print Publication Date:: 24 Nov 2018

Subjects
- Biology
  - Medical Sciences
- Philosophy
  - Social & Political Philosophy

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Chapter 4 âDialogue with Emotionsâ through the Eyes of Patients with Epilepsy and Caregivers

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The Patient-Doctor Dynamics

Examining Current Trends in the Global Healthcare Sector

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Chapter 4 âDialogue with Emotionsâ through the Eyes of Patients with Epilepsy and Caregivers