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Acknowledgements

In: Governing, Protecting, and Regulating the Future of Genome Editing
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Acknowledgements

We wish to thank Dr. Emilia Niemiec, Dr. Andelka Phillips, and Professor Jessica Almqvist for discussions on earlier drafts of the chapters at the Nordic Permed Law Symposium Genome Editing, Health innovation, and Responsible Regulation on November 3–4, 2021. Moreover, we are grateful to Dr. Emilia Niemiec for her insightful comments on the scientific aspects of genome editing.

Timo Minssen’s research for this contribution was supported by a Novo Nordisk Foundation for a scientifically independent Collaborative Research Programme in Biomedical Innovation Law (Grant agreement number NNF17SA0027784).

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Governing, Protecting, and Regulating the Future of Genome Editing

The Significance of ELSPI Perspectives

Cover Governing, Protecting, and Regulating the Future of Genome Editing
E-Book ISBN:
9789004526136
Publisher:
Brill | Nijhoff
Print Publication Date:
23 Feb 2023
  • Subjects
    • Human Rights and Humanitarian Law
      • Human Rights
      • Health Law
    • International Law
      • EU Law
Front Matter
Preliminary Material
Copyright page
Acknowledgements
Introduction: The Significance of ELSPI Perspectives in Governing, Protecting, and Regulating the Future of Genome Editing
Part 1 A Roadmap of ELSPI Perspectives
Genome Editing: Learning from Its Past and Envisioning Its Future
Transformation of Medical Care through Gene Therapy and Human Rights to Life and Health – Balancing Risks and Benefits
Somatic Genome Editing with the Use of AI: Big Promises but Doubled Legal Issues
Addressing Cognitive Vulnerabilities through Genome and Epigenome Editing: Techno-Legal Adaptations for Persons with Intellectual Disabilities
Regulating Heritable Human Genome Editing: Drawing the Line between Legitimate and Controversial Use
The European Court of Human Rights and the Emergence of Human Germline Genome Editing – ‘The Right to Life’ and ‘the Right to (Artificial) Procreation’
The Object-Based and Process-Based Regulation of Genome Editing
Part 2 Bringing Genome Editing to the Market and Making It Available to Patients
A Room with a View (and with a Gene Therapy Drug): Gene Therapy Medicinal Products and Genetic Tourism in Europe
What Would It Take to Enable Germline Editing in Europe for Medical Purposes?
Genetics and Justice, Non-Ideal Theory and the Role of Patents: The Case of CRISPR-Cas9
Balancing Innovation, ‘Ordre Public’ and Morality in Human Germline Editing: A Call for More Nuanced Approaches in Patent Law
The Application of EU Competition Law to the Exploitation of Human Genome Editing Technology
Back Matter
Index of Subjects
Index of Legal Sources
Index of Judicial Cases

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